It has now been almost 1 year since doing the first FMT. I am still symptom free and drug free.
I am still eating SCD, although I did eat a Subway sandwich about a week ago with no reaction at all. Perhaps I the good bacteria is getting a good colony going and I am healing on the inside.
I can eat grapes now, which I couldn't eat before doing a FMT. That shows me that I am able to digest more of what I am eating, which is a good sign.
I am still eating homemade yogurt,homemade sauerkraut, and homemade kefir, every day. I know that helps feed the good bacteria in my gut.
I don't think I will ever go back to eating all the sugar and bread I used to. I feel SO much better and feel I have regained all my strength back that I had lost over those 3 1/2 years of not digesting food.
I am SO glad I was able to find where others wrote about how they did a FMT and it helped them. I firmly believe that the combination of SCD and FMT is what is healing me from UC.
Sugar, yeast, starch, gluten (grains) and lactose all feed the bacteria. Stop feeding the bad bacteria and start feeding the good bacteria and the symptoms go away.
Not sure how long I will stay exclusively SCD, but I want to be positive I don't have any setbacks.
If you have every wondered of doing a home fecal transplant will put you on the road to recovery, what have you got to lose?
(Read the procedure I did for a home fecal transplant on my November 2012 post.)
Teri
Teri, so glad you are doing well. As a UC patient I know the discomfort of living with this disease. I was diagnosed in 1985. I have decided to do this. I have bought a new blender, actually new everything. The part that is stopping me is my new wife of two years. She is willing to do it, but doesn’t want to at the same time. I think it’s the ick factor for her as well as the possibility of hurting me. So, how did your husband deal? Was it scary for him being a non-suffer? Thanks, Sam
ReplyDeleteThank you so much for your updates. I am In so much pain since being diagnoses with crohns in July 2010. I tried doing a transplant and got so much gas and mucus bowel movements the first and only time i tried. My anal area is so raw already.. I just started prednisone and was hospitalized for this pas week. I'm hoping my anal area heals and I can't start FMT again.
ReplyDeleteI'm ready to give up and get a colostomy it's that bad!
Elissa k
Elissa,
DeleteDon't give up. This is a bacteria war going on in your gut. If you are eating any processed foods - sugar, yeast, gluten, grains or starch, stop eating them as they feed the bad bacterial. How crazy that the doctors told me it didn't have anything to do with food I was eating and to eat foods like Jello and puddings and mashed potatoes - all basically sugar, which made my gut worse. Get back to doing the FMTs as you have got to get some good bacteria in your gut. Eating fermented vegetables and kefir have made a huge difference in getting the good bacteria going and healing my gut. There is a Facebook page you can read about people doing FMTs - start at http://thepowerofpoop.com - Keep me updated.
Sam, my husband wasn't thrilled at the idea but he just provided the goods and I did the rest myself. Using a respirator really helped with the smell - that was probably the worst part. I think he knew how miserable I was and how much suffering I was going through. I feel SOO free now. The SCD in combination with FMT is working to starve the bad bacteria and implant the good. Plus fermented vegetables and kefir have made a huge difference in trying to get the balance right again in my gut. This is like your wife throwing you a life preserver if you are drowning - this can literately save your life. Go for it and don't give up. There is a Facebook page you can read about people doing FMTs - start at http://thepowerofpoop.com - Keep me updated.
ReplyDelete